Squirrel Tao » Personal http://squirreltao.dreamfishery.com The tao of my squirrel paths on the web Wed, 17 Feb 2010 21:49:16 +0000 http://wordpress.org/?v=2.9 en hourly 1 Wyatt’s Diagnosis http://squirreltao.dreamfishery.com/2010/02/17/wyatts-diagnosis/ http://squirreltao.dreamfishery.com/2010/02/17/wyatts-diagnosis/#comments Wed, 17 Feb 2010 21:49:16 +0000 Jennifer Elrod http://squirreltao.dreamfishery.com/?p=376 I changed my mind and had Wyatt diagnosed last week. He was not diagnosed as autistic, although he still has one major red flag on his MCHAT (Modified Checklist for Autism in Toddlers) form. The MCHAT is a screening, not a diagnostic form. On the CARS (Childhood Autism Rating Scale) form, he scored 21.5. That is well below the cut-off of 30. The lowest possible score on the CARS is 15. What means more to me than the diagnosis is the evidence of progress that Wyatt has made. Six months ago according to the DP-3 form, he was two standard deviations below the mean in the categories of social/emotional and communication. He was one standard deviation below the mean in the cognitive and adaptive behavior categories. Now on that same form, he is average in the cognitive and adaptive behavior categories. He is still delayed in the social/emotional and communication categories, but he is just one standard deviation below the mean in those areas now. He is in the process of healing, and the doctor validated that. She told me that what I have been doing for him is working. His two primary interventions have been SCD (Specific Carbohydrate Diet) and DIR/Floortime.


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Grazed by a Bullet from the Autism Epidemic http://squirreltao.dreamfishery.com/2009/12/27/grazedbulletautism/ http://squirreltao.dreamfishery.com/2009/12/27/grazedbulletautism/#comments Sun, 27 Dec 2009 22:45:09 +0000 Jennifer Elrod http://squirreltao.dreamfishery.com/2009/12/27/grazedbulletautism/ Life interrupted my plans to release the first chapter of The Myth of Merula by the end of the year. Wyatt, now almost two years old, had been showing some red flags for autism. Some interventions were in order for him. He needed major dietary changes, requiring lots of cooking from scratch. He also needs lots and lots of interaction and play. When I haven’t been cooking or playing with him, I have often been online doing research related to autism, especially biomedical treatment of it.

I’m feeling pretty good about his progress right now, and I’m feeling pretty confident that I’m on the right track in treating his issues. He has not been diagnosed, but the label and code do not matter unless they can get you services you could not otherwise access, or unless they can add to your understanding of your child. In the case of an older child, the label and the code also matter in the school system. What matters right now is clearing up the underlying health problems that were (and still are to a lesser extent) manifesting with behavioral symptoms. My gut tells me that Wyatt is going to be allright now, but if I see reason for concern again, I will have him diagnosed before he is three years old so that he can qualify for ABA.

This is what has worked for us so far. Removing all dairy from Wyatt’s diet helped him immediately. Putting him on the Specific Carbohydrate Diet (SCD) gradually helped him and continues to help gradually. There have been no dramatic jumps with SCD so far, but there has been continual improvement. Giving him saccharomyces boulardii led to another overnight leap in progress, as dramatic as the removal of dairy. It has been so powerful I have had to limit it to a little sprinkle at a time. Oxy Powder along with probiotics to treat his constipation has been the other major help.

Now Wyatt is almost twenty-three months old. He’s playing pretend with his Thomas the Train set and other toys, he’s pointing and grunting at objects all the time wanting me to label them for him, he’s following simple instructions and helping with basic tasks sometimes, and he’s often signing for more when he wants more of something. He says a few words sometimes but doesn’t talk much yet. He laughs when I laugh, imitates my actions all the time, and likes to play simple interactive games like running when somebody says “Go go go”. Often he initiates games such as putting a hat on my head so I will pretend to sneeze and make the hat fall off. Yet he still doesn’t interact much with anybody when he is focused on playing with a toy. And when he does interact with somebody, he doesn’t go back and forth very many times before he gets distracted or moves onto something else. He doesn’t do as many circles of communication in a row as a typically developing kid of his age. He has been slow to pick up on signing. He needs to get more obvious with his nonverbal communication, which is often subtle. Not long ago his only communication often consisted of nothing but a look from him. He still has some room for improvement. But my gut tells me he will begin talking a lot more pretty soon, after he masters the developmental level of his current pointing frenzy.

So how did this happen to us? Wyatt has never been vaccinated. I think several things contributed to his issues. First, the entire time I was in labor, I was on antibiotics, because I had Group B Strep. Antibiotics selectively kill bacteria, leaving yeast and clostridia untouched and free to proliferate to fill in the gaps in the internal ecology. Yeast and clostridia are both high on the list of things that cause autistic symptoms. In fact, in a study, autistic kids who received anti-clostridia medication improved but then regressed as soon as the medication stopped. Yeast actually puts toxins into the system that are the same as a hangover, because its byproduct of fermentation is alcohol. Alcohol and hangover toxins have a profound effect on developing neurological systems. When Wyatt passed through my birth canal, he likely got colonized with clostridia and yeast but not any beneficial bacteria. So he had that going for him.

Second, I think I had my own issues that made my breast milk a mixed blessing for him. I can remember eating ice cream and a bowl of cereal every night after he was asleep, when he was a newborn. Who knows when his dairy issue developed or how, but it could have happened then. When he was four months old, I finally figured out that if I did not drink milk, he would not spit up. But I returned to eating cheese after a while, since I didn’t see any sign it was harming him. I wasn’t sure about ice cream, so I limited it. It turns out that autistic kids have a lot of trouble with casein, so all that cheese I ate definitely did Wyatt no good.

Third, trouble digesting gluten runs in my family, on my mother’s side. When Wyatt was fourteen months old and his constipation was getting horrendous, I fed him lots and lots of whole wheat baked goods full of fruit and ground flax seed, in an attempt to get fiber into him. It was the only way I could get him to eat fibrous food. I couldn’t figure out why he kept getting worse, even after eating things like whole wheat muffins full of shredded carrot, raisins, pineapple tidbits, and ground flaxseed. Now I think all that undigested gluten from the whole wheat was actually making his constipation worse. Not only that, but undigested gluten forms opioids that bind to receptors in the brain and contribute to autistic symptoms. And as a bonus, all those undigested carbs rotting in his little constipated gut were feeding yeast and harmful bacteria.

Fourth, I believe that Wyatt was born with a weak liver. It took two months for the yellow patch from his newborn jaundice to disappear from his forehead. I don’t know why he had a weak liver, but I suspect that it didn’t help that my office building was remodeled while I was pregnant. Everybody at work was getting headaches from the strong fumes. The worst of the fumes lasted for days and days.

Fifth, I gave Wyatt Tylenol during his first year while he was teething. It turns out that Tylenol severely depletes glutathione stores in the liver. Autistic kids are known to have extremely low glutathione levels. Glutathione is a key antioxidant. Your body’s ability to detox is crippled without it.

If I ever had another one, I would do several things differently. I would make sure my gut was very healthy before getting pregnant, and I would drink tons of kefir and eat tons of yogurt to keep it that way. I would give the baby probiotics at the first sign of colic or stomach ache. I would avoid Tylenol entirely. I would avoid introducing any gluten during the first two years. And I’d also keep it out of my diet and my breast milk. I would be very careful introducing dairy and would start with yogurt and kefir, avoiding milk altogether. And the same would go for my diet while I was breastfeeding. So that’s my take on it. Others have entirely different stories, I’m sure.


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Month Eight of New Mommydom and an Assessment of Attachment Parenting http://squirreltao.dreamfishery.com/2008/10/18/month-eight-of-new-mommydom-and-an-assessment-of-attachment-parenting/ http://squirreltao.dreamfishery.com/2008/10/18/month-eight-of-new-mommydom-and-an-assessment-of-attachment-parenting/#comments Sun, 19 Oct 2008 03:47:30 +0000 Jennifer Elrod http://squirreltao.dreamfishery.com/2008/10/18/month-eight-of-new-mommydom-and-an-assessment-of-attachment-parenting/ I’m now halfway through month eight of new mommydom, and I’m getting my head above water and coming up for air. Wyatt is now happily creeping backwards around the kitchen and living room floors. The baby who always wanted to be held is now the baby who bucks in my arms when he wants to be put down. The baby who needed me to provide him with some sort of stimulating change every five minutes is now the baby who can spend a half hour to an hour at a time on the floor with the same collection of objects. I’m now in a position to review my practice of attachment parenting and conclude that it has lived up to at least one of its selling points, to my great relief. Dr. Sears and other proponents have long claimed that attachment parenting results in kids that are more, not less, independent.

My babe is not spoiled or clingy. He’s choosing independence that is appropriate for his developmental phase. Not only does he not try to monopolize my attention, but I have to work to get his attention, because he’s so curious about the world. All he seems to want to do all the time is look around for interesting objects to grab and shake, bang, drop, push or fling. If I want him to look at me longer than two seconds, I have to make funny noises, army crawl across the floor, play an I’m-gonna-get-you game, or come up with some other antic that he thinks is funny. It could be that he is showing his personality already. Or maybe all the babywearing I did encouraged him to feel secure with me while not focusing on me, but instead focusing on the environment as I moved around. Either way, no worries about him wanting to be the center of attention all the time. No, he just wants me to be a reliable base of operations for him to explore his world.

It seems he could happily relegate me to the role of feeder and object retriever! As long as I pick him up to bounce and sing to him whenever he gets tired or his teething gets bad. That and get him unstuck when he backs himself into a corner. He does not yet know how to go forwards! Oh yeah, and another important role is to keep Marten the Cat from sticking his butthole in Wyatt’s face. (Though Wyatt doesn’t seem to mind when he does. In fact, he grabbed Marten’s butthole a few days ago.)


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The Name of the Game for the Pre-Crawler: Keep ‘Em from Getting Bored http://squirreltao.dreamfishery.com/2008/08/08/attachment-parenting-revisited/ http://squirreltao.dreamfishery.com/2008/08/08/attachment-parenting-revisited/#comments Sat, 09 Aug 2008 02:02:11 +0000 Jennifer Elrod http://squirreltao.dreamfishery.com/2008/08/08/attachment-parenting-revisited/ It’s not even one month since I wrote the last post on attachment parenting, and already my thoughts are different. They’re not totally different, but I’ve further refined and qualified the insight from The Continuum Concept about not being child centered. Previously I had decided to let Wyatt whine more often. Now I’m working harder to keep him constantly stimulated. I don’t believe this will spoil him, and I think the effort will be worth it.

I’ve decided that the name of the game for the next two or three months, until Wyatt is mobile, is to keep him from getting bored. Thus when he whines, although I have to delay him sometimes to finish something, I’m still taking his whining seriously and stopping it before well before it leads to whimpering or crying. The New First Three Years has an important section on how to treat the baby who is 6-8 months old. Pretty much, don’t let the baby cry from boredom, because it will teach the baby to demand cry. This demand crying, once begun, is apt to continue and get worse. If you can keep it from getting started, your baby will in essence remain too innocent to cry as a way to demand attention from you. This is hard, since babies in this phase are ultra curious about the world yet can’t explore it on their own. But it’s worth it. In practical terms, for me, it means doing lots of loops outside in the back yard. Wyatt almost never whines outside, and after he gets his nature fix, he is often less susceptible to boredom for a while, provided I remain active indoors. He often sighs happily throughout the day, when I manage to give him a full day.

It also means wearing him around a lot in the Joey position in my new Ellaroo wrap. He is strapped right to my belly, facing out, with his arms and legs dangling. He loves it. People laugh when they see it, but they also comment on how much fun it looks like he’s having, as he looks around wide-eyed and swings his legs. Babywearing orthodoxy has it that facing babies out is bad. This is thought to be because they get overstimulated and can’t read the mother’s social cues. In actuality, Wyatt pays no attention to me whatsoever when I carry him. He pays attention to the world. If somebody else is holding him, he often won’t take his eyes off me unless he’s outdoors, but if I’m holding him, he doesn’t want to look at my social cues. He wants to look around, and he doesn’t want to miss a thing. He hates hates hates the tummy-to-tummy position. It makes him cry. As soon as he will tolerate it, however, I will wear him in a high back carry. This will have the advantage of allowing him to rest his head on my shoulder to sleep when he gets tired, while also allowing him a vantage point to see everything.


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Not As Attached to Attachment Parenting Anymore http://squirreltao.dreamfishery.com/2008/07/19/attachment-parenting/ http://squirreltao.dreamfishery.com/2008/07/19/attachment-parenting/#comments Sun, 20 Jul 2008 04:06:13 +0000 Jennifer Elrod http://squirreltao.dreamfishery.com/2008/07/19/attachment-parenting/ Now that my son is five months old, I have had more opportunities to learn and reflect, and I’ve decided that I’m not as attached to attachment parenting as I used to be. If I erred, though, at least I erred on the side of babying my baby too much rather than too little. He’s only five months old, and I’m glad he got through his early, fussy months without crying very much. In a nutshell, however, I have come to believe AP can be bad for both the baby and the parents if it is taken to an extreme or misapplied. Why? Because a baby needs a happy Mommy and Daddy. Time to stop living our lives in fear of the fussies!

I have gotten Wyatt through his fussy phase by revolving my life around keeping him happy, but now it’s time for me to start living my life again while including him in it. I’ve even been limiting my car trips because Wyatt cries in the car seat if he’s in it longer than 10-15 minutes at a time. He will cry himself to sleep after a few minutes, but then if I stop at a light or a stop sign, he will usually awaken to begin the cycle again. But for awhile a thought has been bothering me in the back of my mind. If Mommy doesn’t have a life, baby’s not going to learn about life. Babies don’t only need security. They also need novelty. They don’t just need for their needs and cues to be responded to. They need leadership. Plus it helps their development of language and social skills if Mommy is animated and happy when playing with them and talking to them, rather than burned out.

Until he’s old enough to crawl, I still intend to have Wyatt in arms, lap or carrier most of the time when he’s not napping. I’m not going to run out and buy plastic contraptions such as walkers to place him in so that I don’t have to hold him. But I’ve decided to institute more balance by making our household a parent-led, not a baby-led, household. The difference in how I treat him now is not dramatic. It is a shift in attitude and perspective, with only subtle changes how I behave. I still breast feed him on demand. I still intend to delay solids until he shows signs of readiness. I won’t let him cry it out; I intend to follow the methods in The No Cry Sleep Solution.

But I will let him whine more at times. For example, today while I was showering, I had him in the bathroom in his infant seat with a toy to play with. He started whining. Ordinarily, I would hurry through the shower. I would not wash my face after getting out. I would postpone that until later. I would not clip my toenails if I saw they needed trimming. Today, I decided to let him whine while I washed my hair twice. I didn’t take my sweet time with everything, but I didn’t rush as if to put out a fire, either. I did everything I wanted to do, efficiently but not frantically. Occasionally, I would peek out the curtain and say, “Give Mommy just a minute.” When I stepped out of the shower, Wyatt was fine. He was quietly playing with his toy. Instead of immediately playing with him to make up for ignoring him for fifteen minutes, I put him in the pouch and went about my business. My husband commented that he looked really sedate inside the pouch. Far from being unhappy with how I had just treated him, it seemed to calm him.

For a little while now, I have begun to have doubts about the way that I have been implementing AP in our household. One thing that gave me pause was a tidbit of information my husband told me about his friend’s family life. Every time his friend’s wife goes to the bathroom, her toddler and three year old both pound on the door until she comes out. She is one of the few women in my circle of acquaintances who seems to have been parenting her kids the AP way. For example, when they were babies, her husband had to come home from lunch every day to bring her lunch, because she couldn’t put the babies down to feed herself. Now, I know that most AP parents don’t take things to this extreme. It was just the way that this couple did it. I certainly have not been living that way. But I have gone six months without getting a haircut. And I could really identify with the mother who blogged about feeling guilty about changing the kitty litter. (Halfway through, her baby cried. She had to finish up and wash her hands before she could comfort her baby, leaving her feeling guilty.) I also know what this mother means when she writes about how attachment parenting can become absurd in practice. And this Berkeley Parents Network thread was very interesting.

But do the leaders of the AP movement themselves really advocate for women to live a life of such extreme self-sacrifice and such extreme baby-centeredness in order to avoid doing permanent emotional damage to their offspring? I was surprised this evening to read on the web site of Dr. Sears himself:

“Attachment parenting is a question of balance –not being indulgent or permissive, yet being attentive. As you and your baby grow together, you will develop the right balance between attentive, but not indulgent. In fact, being possessive, or a ’smother mother’ (or father) is unfair to the child, fosters an inappropriate dependency on the parent, and hinders your child from becoming normally independent. For example, you don’t need to respond to the cries of a seven-month-old baby as quickly as you would a seven-day-old baby.

As your baby grows, you become more expert in reading her cries, so you can gradually delay your response. Say, for example, you are busy in the kitchen and your seven-month-old is sitting and playing nearby and cries to be picked up. Instead of rushing to scoop your baby up, simply acknowledge your baby and give your baby ‘it’s okay’ cues. Because you and your baby are so connected, your baby can read your body language and see that you’re not anxious, so you naturally give your baby the message, ‘No problem, baby, you can handle this.’ In this way, you’re being a facilitator , and because of your close attachment you’re actually better able to help your baby delay gratification and ease into independence.”

And the author of The Continuum Concept, Jean Liedloff, goes so far as to recommend that AP parents be parent-led, not child-led, in how they go about it. She recommends holding or carrying your baby, but not focusing on him or her. She points out that babies want to learn how their parents live. They are looking to their parents for leadership. If the parent is always focusing on the baby, the baby is not getting to see the parent in action. In fact, she believes that taking the child-led philosophy too far will result in babies becoming less, not more, secure. This is because they will sense the lack of confidence in their parents. Their parents are looking to them for leadership, but how can they lead? They are babies. They will fuss. Toddlers and older children will continually test boundaries trying to find out where the boundaries are. See the online article, “Who’s in Control? The Unhappy Consequences of Being Child-Centered“.

EDIT 7/21/08: There can be pitfalls to trying not to be child-centered, as Scott Noelle points out in his online article, “Where’s My Center“. He cautions that if it feels wrong to make a conscious effort not to pay direct attention to your baby or child, listen to your heart. He notes the fascinating observation that mothers in hunter-gatherer societies actually pay more attention to their babies than what appears to the eye of a Western observer. This is because in hunter-gatherer societies, people communicate in a liminal way, with subtle cues. They have to, because they rely upon it for their survival. The real problem, says Scott Noelle, is not giving babies and children too much direct attention. It is giving them the wrong kind of attention, the kind that makes it seem to them as if we do not know what we are doing and we are looking to them for guidance.

Somehow, I think I must have missed this type of nuance when I was pregnant and reading the literature, and then after I gave birth and consulted it again (in my two minute windows of time). In The Baby Book, I remembered reading that if a mother will respond to her baby’s signals before he cries, it will teach the baby to communicate. I also recall reading in The Happiest Baby on the Block that babies in many non-Western cultures almost never cry. Several articles I have read have cited the scientific finding that it is bad for babies to cry, because it floods their bodies with the stress hormone cortisol and deprives them of oxygen. Put this all together with my new mother feelings of “Oh, God, he’s crying, he’s about to die!” and you get a new mother who lived her life in fear of the fussies for four months. And I don’t exxaggerate that or say that tongue in cheek.

But my concepts were not formed only by books and articles filtered through a new mother state of mind. They were also formed by other AP mothers in the online forums. Over and over again I read horrific threads about exhausted mothers who are living tortuous existences in service of their young. For example, one woman has terrible hip pain plus severe sleep deprivation from co-sleeping with her 17 month old baby who nurses every 1-2 hours all night long. But she won’t stop doing it. The message is clear between the lines. You have to live with the pain because if you don’t, you will do permanent emotional scarring to your own child. That’s how I interpret it. Would it really be a greater evil for this woman to allow her 17 month old baby to cry a little bit for a few nights so that his mother could stop being tortured? Is all her pain really necessary for her baby’s well-being?

I have been told things by several women in response to my (I think) rather moderate and tepid posts about seeking more balance as a new mother. One woman admonished me that I should always put my baby’s needs ahead of my own. Another told me severely that since I chose to have the baby, I was responsible for doing whatever would give the baby the best start in life. You would think I had just written a post saying I wanted to go out drinking and flirting with men while I left my baby at home in a dark room, alone, crying, hungry, in a poopy diaper with a diaper rash. But no. All I had written was that I was going to start being a leader to my baby and that I was hoping for my baby to become more independent of me so I could get away more. Another woman told me that if I’m a leader to my baby, I’m not AP, because AP is about being child-led.

These few women did not reflect not the majority. The majority of women who responded to me were more empathetic and flexible and less judgemental. But their responses were geared toward helping me continue to do as much as I possibly can, along the lines of what I have been doing, without getting burned out. It’s okay to have balance if you are weak enough to need it, because it’s better than being depressed and exhausted. That’s sort of the message I get, but maybe that’s just my warped perception. That it’s okay not to be perfect but the ideal is still very clear. The ideal is still do your utmost to sacrifice yourself for baby, so that baby will turn out to be as emotionally wonderful as possible.

I think the ideal itself needs a little adjustment.

I’m clear now on that, but I still have lots of questions about the nitty gritty everyday implementation of my modified AP concepts or whatever they are (I don’t care if they’re not truly AP). I still wonder how I can keep my baby happy being carried and focusing on my life when my life is so boring and isolated, and I still wonder how my life can get less boring and isolated, given that I have such small windows of time in between feeding him and getting him to nap.

I get him to observe whatever I can. When his Daddy works in the garden, I go outside, and he watches. Today he even watched me pull a few weeds from inside his pouch. I had not yet done that because I didn’t want to get my hands dirty because, if he fussed, I wanted to be able to remove him immediately and comfort him, without taking the time to wash my hands first. Wow! I was actually brave enough to pull weeds and get my hands dirty five months after giving birth! I wonder what I will be brave enough to take on next now that I feel newly liberated not to make my baby the constant center of attention and keep him happy every second.

When I was pregnant, I used to fantasize about my cool life as a new mother, going around wherever I wanted, while my baby rode with me in a sling or pouch of some kind. I thought baby could feed, nap and learn while I socialized, shopped, hiked trails, walked beaches, and did everything except have sex. I also imagined I could have a home based business while baby learned from watching me. Somehow I had gotten this impression from some of the AP and babywearing literature. Mommy-baby utopia! How easy it would be, and how win-win.

The reality is that babies, when they are worn in a carrier – if they even consent to being worn – like constant motion and action. So if I have a home based business that involves sitting on my ass in front of my computer, I can’t wear my baby more than five minutes while doing so, unless he is in a deep sleep. I have to get on my computer while he sleeps at night. This illustrates one difference between a stone age culture and our culture. If I were gathering all day, my baby would be easy to keep happy. The mothers in The Continuum Concept did not try to have internet businesses. And this is why being a mother is still not easy in spite of my new “Baby Whisperer” attitude.

EDIT 7/21/08: My mother says it will get easier once baby is crawling, which should be coming up soon! And a woman in a WAHM forum said that it becomes possible to work at home, even while baby is not sleeping, once baby is walking.


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